LAI, Meng-Chuan; AMESTOY, Anouck; BISHOP, Somer; BROWN, Heather M; GIWA ONAIWU, Morénike; HALLADAY, Alycia; HARROP, Clare; HOTEZ, Emily; HUERTA, Marisela; KELLY, Amy; MILLER, Dylan; NORDAHL, Christine Wu; RATTO, Allison B; SAULNIER, Celine; SIPER, Paige M; SOHL, Kristin; ZWAIGENBAUM, Lonnie; GOLDMAN, Sylvie

doi:10.1016/S2352-4642(23)00221-3

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LAI, Meng-Chuan

AMESTOY, Anouck
Institut de Neurosciences cognitives et intégratives d'Aquitaine [INCIA]

BISHOP, Somer

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The Lancet Child and Adolescent Health. 2023-12, vol. 7, n° 12, p. 897-908

Résumé en anglais

Emerging evidence suggests that the higher prevalence of autism in individuals who are assigned male than assigned female at birth results from both biological factors and identification biases. Autistic individuals who are assigned female at birth (AFAB) and those who are gender diverse experience health disparities and clinical inequity, including late or missed diagnosis and inadequate support. In this Viewpoint, an international panel of clinicians, scientists, and community members with lived experiences of autism reviewed the challenges in identifying autism in individuals who are AFAB and proposed clinical and research directions to promote the health, development, and wellbeing of autistic AFAB individuals. The recognition challenges stem from the interplay between cognitive differences and nuanced or different presentations of autism in some AFAB individuals; expectancy, gender-related, and autism-related biases held by clinicians; and social determinants. We recommend that professional development for clinicians be supported by health-care systems, professional societies, and governing bodies to improve equitable access to assessment and earlier identification of autism in AFAB individuals. Autistic AFAB individuals should receive tailored support in education, identity development, health care, and social and professional sense of belonging. © 2023 Elsevier Ltd< Réduire

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Autistic Disorder / diagnosis

Autistic Disorder / epidemiology

Autistic Disorder / psychology

Female

Gender Identity

Humans

Infant

Newborn

Interpersonal Relations

Male

Prevalence

Research

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Improving autism identification and support for individuals assigned female at birth: clinical suggestions and research priorities

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