Show simple item record

dc.rights.licenseopenen_US
dc.contributor.authorMONTALESCOT, Lucile
dc.contributor.authorDORARD, Geraldine
dc.contributor.authorSPEYER, Elodie
dc.contributor.authorLEGRAND, Karine
dc.contributor.authorAYAV, Carole
hal.structure.identifierBioingénierie tissulaire [BIOTIS]
dc.contributor.authorCOMBE, Christian
ORCID: 0000-0002-0360-573X
IDREF: 58708871
dc.contributor.authorSTENGEL, Benedicte
dc.contributor.authorUNTAS, Aurelie
dc.date.accessioned2023-04-04T08:16:12Z
dc.date.available2023-04-04T08:16:12Z
dc.date.issued2022-06
dc.identifier.issn1724-6059en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/172703
dc.description.abstractEnBackground: Little is known about psychological issues in patients with chronic kidney disease (CKD) facing transition to kidney failure and the involvement of their family in decision-making about kidney replacement therapy (KRT). This study investigated patients’ experience of their illness, their views on KRT choice and their perception of the influence of their relatives. Methods: We conducted a qualitative study nested in the CKD-REIN prospective cohort study which included non-dialysis CKD patients from 40 nationally representative nephrology clinics. Among 1555 patients who returned a self-administered questionnaire, we used purposive sampling to select 50 participants who underwent semi-structured phone interviews with a psychologist. Results: The patients' mean age was 62.2 ± 12 years, 42% were women, and 68% had CKD stage 4–5. The analysis yielded four lexical classes: “illness rhythm”, “considering dialysis”, “family and transplantation”, and “disease, treatment choice and introspection”. When experiencing few or mild symptoms, patients tended to avoid thinking about CKD, for the prospect of dialysis was the most stressful part of their experience. Surprisingly, the importance of family appeared when they talked about transplantation decision-making, but not about choice of dialysis modality. Conclusions: Cognitive avoidance seems common in patients with advanced CKD. Transplantation and dialysis decision-making appear to be two distinct processes, with different levels of family involvement. More research is needed to better understand the frequency and impact of cognitive avoidance on patients’ well-being and decision-making. Graphic abstract: [Figure not available: see fulltext.].
dc.language.isoENen_US
dc.rightsAttribution 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/us/*
dc.subject.enAdvanced CKD
dc.subject.enQualitative research
dc.subject.enTreatment decision-making
dc.title.enPatient perspectives on chronic kidney disease and decision-making about treatment. Discourse of participants in the French CKD-REIN cohort study
dc.title.alternativeJ Nephrolen_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1007/s40620-022-01345-6en_US
dc.subject.halSciences du Vivant [q-bio]/Médecine humaine et pathologieen_US
bordeaux.journalJournal of Nephrologyen_US
bordeaux.page1387-1397en_US
bordeaux.volume35en_US
bordeaux.hal.laboratoriesBioingénierie Tissulaire (BioTis) - U1026en_US
bordeaux.issue5en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionCNRSen_US
bordeaux.institutionINSERMen_US
bordeaux.institutionCHU de Bordeauxen_US
bordeaux.institutionInstitut Bergoniéen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.exportfalse
dc.rights.ccCC BYen_US
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Journal%20of%20Nephrology&rft.date=2022-06&rft.volume=35&rft.issue=5&rft.spage=1387-1397&rft.epage=1387-1397&rft.eissn=1724-6059&rft.issn=1724-6059&rft.au=MONTALESCOT,%20Lucile&DORARD,%20Geraldine&SPEYER,%20Elodie&LEGRAND,%20Karine&AYAV,%20Carole&rft.genre=article


Files in this item

Thumbnail
Thumbnail

This item appears in the following Collection(s)

Show simple item record