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Evaluation of the template letter regarding the disclosure of genetic information within the family in France

dc.rights.licenseopenen_US
dc.contributor.authorZORDAN, C.
dc.contributor.authorMONTEIL, L.
dc.contributor.authorHAQUET, E.
dc.contributor.authorCORDIER, C.
dc.contributor.authorTOUSSAINT, E.
dc.contributor.authorROCHE, P.
dc.contributor.authorDORIAN, V.
dc.contributor.authorMAILLARD, A.
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorLHOMME, Édouard
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorRICHERT, Laura
dc.contributor.authorPASQUIER, L.
dc.contributor.authorAKLOUL, L.
dc.contributor.authorTARIS, N.
hal.structure.identifierLaboratoire Maladies Rares: Génétique et Métabolisme (Bordeaux) [U1211 INSERM/MRGM]
dc.contributor.authorLACOMBE, Didier
dc.date.accessioned2020-07-20T12:31:45Z
dc.date.available2020-07-20T12:31:45Z
dc.date.issued2019-10
dc.identifier.issn1868-310X (Print) 1868-310xen_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/10534
dc.description.abstractEnThe 2011 French Bioethics Law regarding disclosure of genetic information within families enables health professionals to notify any at-risk relatives directly, with the patient's consent, using a template letter. To assess the impact of this template letter in terms of understanding, personal feelings and intent to contact a health professional, we conducted a study interviewing patients, members of the public and genetic professionals. Although the main response to the letter was anxiety, this was associated with good understanding of the content and most individuals mentioned intention to contact a health professional.
dc.language.isoENen_US
dc.subject.enSISTM
dc.subject.enUSMR
dc.title.enEvaluation of the template letter regarding the disclosure of genetic information within the family in France
dc.title.alternativeJ Community Geneten_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1007/s12687-019-00418-7en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
dc.identifier.pubmed30919323en_US
bordeaux.journalJournal of Community Geneticsen_US
bordeaux.page489-en_US
bordeaux.volume10en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - U1219en_US
bordeaux.issue4en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionINSERM
bordeaux.teamSISTM_BPH
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.identifierhal-03162543
hal.version1
hal.date.transferred2021-03-08T14:21:33Z
hal.exporttrue
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