Evaluation of the template letter regarding the disclosure of genetic information within the family in France
| dc.rights.license | open | en_US |
| dc.contributor.author | ZORDAN, C. | |
| dc.contributor.author | MONTEIL, L. | |
| dc.contributor.author | HAQUET, E. | |
| dc.contributor.author | CORDIER, C. | |
| dc.contributor.author | TOUSSAINT, E. | |
| dc.contributor.author | ROCHE, P. | |
| dc.contributor.author | DORIAN, V. | |
| dc.contributor.author | MAILLARD, A. | |
| hal.structure.identifier | Bordeaux population health [BPH] | |
| dc.contributor.author | LHOMME, Édouard | |
| hal.structure.identifier | Bordeaux population health [BPH] | |
| dc.contributor.author | RICHERT, Laura | |
| dc.contributor.author | PASQUIER, L. | |
| dc.contributor.author | AKLOUL, L. | |
| dc.contributor.author | TARIS, N. | |
| hal.structure.identifier | Laboratoire Maladies Rares: Génétique et Métabolisme (Bordeaux) [U1211 INSERM/MRGM] | |
| dc.contributor.author | LACOMBE, Didier | |
| dc.date.accessioned | 2020-07-20T12:31:45Z | |
| dc.date.available | 2020-07-20T12:31:45Z | |
| dc.date.issued | 2019-10 | |
| dc.identifier.issn | 1868-310X (Print) 1868-310x | en_US |
| dc.identifier.uri | https://oskar-bordeaux.fr/handle/20.500.12278/10534 | |
| dc.description.abstractEn | The 2011 French Bioethics Law regarding disclosure of genetic information within families enables health professionals to notify any at-risk relatives directly, with the patient's consent, using a template letter. To assess the impact of this template letter in terms of understanding, personal feelings and intent to contact a health professional, we conducted a study interviewing patients, members of the public and genetic professionals. Although the main response to the letter was anxiety, this was associated with good understanding of the content and most individuals mentioned intention to contact a health professional. | |
| dc.language.iso | EN | en_US |
| dc.subject.en | SISTM | |
| dc.subject.en | USMR | |
| dc.title.en | Evaluation of the template letter regarding the disclosure of genetic information within the family in France | |
| dc.title.alternative | J Community Genet | en_US |
| dc.type | Article de revue | en_US |
| dc.identifier.doi | 10.1007/s12687-019-00418-7 | en_US |
| dc.subject.hal | Sciences du Vivant [q-bio]/Santé publique et épidémiologie | en_US |
| dc.identifier.pubmed | 30919323 | en_US |
| bordeaux.journal | Journal of Community Genetics | en_US |
| bordeaux.page | 489- | en_US |
| bordeaux.volume | 10 | en_US |
| bordeaux.hal.laboratories | Bordeaux Population Health Research Center (BPH) - UMR 1219 | en_US |
| bordeaux.issue | 4 | en_US |
| bordeaux.institution | Université de Bordeaux | en_US |
| bordeaux.institution | INSERM | |
| bordeaux.team | SISTM_BPH | |
| bordeaux.peerReviewed | oui | en_US |
| bordeaux.inpress | non | en_US |
| hal.identifier | hal-03162543 | |
| hal.version | 1 | |
| hal.date.transferred | 2021-03-08T14:21:33Z | |
| hal.export | true | |
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