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People with Dementia in Sub-Saharan Africa: From Support to Abuse by Caregivers: Results of EPIDEMCA-FU Program in Congo

dc.rights.licenseopenen_US
dc.contributor.authorKEHOUA, G.
dc.contributor.authorDUBREUIL, C. M.
dc.contributor.authorNDAMBA-BANDZOUZI, B.
dc.contributor.authorGUERCHET, M.
dc.contributor.authorMBELESSO, P.
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorDARTIGUES, Jean-Francois
ORCID: 0000-0001-9482-5529
IDREF: 058586105
dc.contributor.authorPREUX, P. M.
dc.contributor.authorGRP, Epidemca
dc.date.accessioned2020-06-25T08:40:44Z
dc.date.available2020-06-25T08:40:44Z
dc.date.issued2019-04-03
dc.identifier.issn1664-5464en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/8186
dc.description.abstractEnBackground/Aims: Dementia is an emerging public health problem in sub-Saharan Africa (SSA). In SSA, the stigma suffered by people with dementia (PWD) can be strongly linked to pejorative social representations, interfering in social relationships with informal caregivers. The objective of the study was to analyze the consequences of social representations of PWD in social interactions with informal caregivers. Methods: A qualitative study was conducted in Republic of Congo among 93 interviewees. Nondirectional interviews were conducted in local languages and complemented by participating observations. The collected data were transcribed literally, synthesized, and then coded to allow extraction and organization of text segments. Results: Informal caregivers, daughters-in-laws, were considered as abusers and granddaughters as benevolent. The leaders of syncretic churches and traditional healers were the first therapeutic itineraries of PWD, due to pejorative social representations of disease. Of these, some PWD have appeared at front of a customary jurisdiction for accusations of witch-craft. Dementia, perceived as a mysterious disease by informal caregivers, wasn't medicalized by leaders of syncretic churches, traditional healers, nurses, or general practitioners. Conclusion: Stigma, generated by social representations, can change the patient's behavior and the one of informal caregivers, leading to time delay in the search for appropriate help. (C) 2019 The Author(s) Published by S. Karger AG, Basel
dc.language.isoENen_US
dc.subject.enSEPIA
dc.title.enPeople with Dementia in Sub-Saharan Africa: From Support to Abuse by Caregivers: Results of EPIDEMCA-FU Program in Congo
dc.title.alternativeDement Geriatr Cogn Disord Extraen_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1159/000489846en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
bordeaux.journalDementia and Geriatric Cognitive Disorders Extraen_US
bordeaux.page163-175en_US
bordeaux.volume9en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - UMR 1219en_US
bordeaux.issue1en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.exportfalse
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Dementia%20and%20Geriatric%20Cognitive%20Disorders%20Extra&rft.date=2019-04-03&rft.volume=9&rft.issue=1&rft.spage=163-175&rft.epage=163-175&rft.eissn=1664-5464&rft.issn=1664-5464&rft.au=KEHOUA,%20G.&DUBREUIL,%20C.%20M.&NDAMBA-BANDZOUZI,%20B.&GUERCHET,%20M.&MBELESSO,%20P.&rft.genre=article


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