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Support practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase

dc.rights.licenseopenen_US
dc.contributor.authorMELIN, M.
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorAMIEVA, Helene
dc.contributor.authorFRASCA, M.
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorOUVRARD-BROUILLOU, Camille
dc.contributor.authorBERGER, V.
dc.contributor.authorHOARAU, H.
dc.contributor.authorROUMIGUIERE, C.
dc.contributor.authorPATERNOSTRE, B.
dc.contributor.authorSTADELMAIER, N.
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorRAOUX, Nadine
ORCID: 0000-0002-8905-7112
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorBERGUA, Valerie
IDREF: 09428895X
dc.contributor.authorBURUCOA, B.
dc.date.accessioned2021-03-15T15:55:47Z
dc.date.available2021-03-15T15:55:47Z
dc.date.issued2020-11-19
dc.identifier.issn1472-684xen_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/26673
dc.description.abstractEnBACKGROUND: In the absence of extant recommendations, the aim of this study was to formalise support practices used by an interdisciplinary team in a palliative-care unit (PCU) for the relatives of patients in the agonal phase preceding death. The secondary objective was to understand the expectations of relatives during this phase in terms of the support provided by professionals and volunteers. METHODS: Thirty-two people took part in this study; all were interviewed through focus groups (FGs). Each FG comprised one category of individuals working in the PCU: nurses, care- assistants, doctors, psychologists, other professionals, palliative-care volunteers, and relatives. Groups were surveyed using an interview guide, and the interviews were recorded and transcribed to enable identification and characterization of all practices. Care practices were classified into four categories: current consensual practices (i.e. performed by all team members), occasional consensual practices, non-consensual practices (performed by one or a few participants), and practices to be developed. RESULTS: In total, 215 practices were mentioned by professionals and palliative-care volunteers: 150 current consensual practices, 48 occasional consensual practices, 1 non-consensual practice, 16 practices yet to be developed, and 29 practices for relatives. Many practices were mentioned by different categories of participants; thus, after cross-checking, the number of practices decreased from 215 to 52. A list of practices deemed desirable by all was drawn up and then validated by the entire interprofessional team. These practices were organised around four themes: providing care and ensuring comfort; communicating, informing, and explaining; interacting; and mobilising interdisciplinary skills. CONCLUSIONS: These results underline the importance of the quality of care provided to patients, the attention given to the relatives themselves, and they highlight the importance of the helping relationship. Following this study, which established a list of varied practices aimed at supporting the relatives of patients in agonal phase, it will be important to set up a broader study seeking to establish a consensus on these practices with an interprofessional group of experts from other PCUs using broad surveys and an adapted methodology. Such studies will make it possible to develop training modules for teams working with relatives.
dc.language.isoENen_US
dc.rightsAttribution 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/us/*
dc.title.enSupport practices by an interdisciplinary team in a palliative-care unit for relatives of patients in agonal phase
dc.title.alternativeBMC Palliat Careen_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1186/s12904-020-00680-4en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
dc.identifier.pubmed33213448en_US
bordeaux.journalBMC Palliative Careen_US
bordeaux.page173en_US
bordeaux.volume19en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - U1219en_US
bordeaux.issue1en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.teamSEPIAen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.identifierhal-03169843
hal.version1
hal.date.transferred2021-03-15T15:55:52Z
hal.exporttrue
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