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Expectations and fears of patients with diabetes and macular edema treated by intravitreal injections

dc.rights.licenseopenen_US
dc.contributor.authorFAJNKUCHEN, F.
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorDELYFER, Marie-Noelle
dc.contributor.authorCONRATH, J.
dc.contributor.authorBAILLIF, S.
dc.contributor.authorMREJEN, S.
dc.contributor.authorSROUR, M.
dc.contributor.authorBELLAMY, J. P.
dc.contributor.authorDUPAS, B.
dc.contributor.authorLECLEIRE-COLLET, A.
dc.contributor.authorMEILLON, Celine
ORCID: 0000-0001-7891-9648
dc.contributor.authorBONICEL, P.
dc.contributor.authorHOBEIKA, M.
dc.contributor.authorGIOCANTI-AUREGAN, A.
dc.date.accessioned2021-01-25T10:30:25Z
dc.date.available2021-01-25T10:30:25Z
dc.date.issued2020
dc.identifier.issn1432-5233 (Electronic) 0940-5429 (Linking)en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/25976
dc.description.abstractEnAims Clinical outcomes of diabetic macular edema (DME) have been widely described, but data on diabetic retinopathy perceptions by diabetes patients are limited. The aim of this survey was to explore the lived experience, knowledge, fears and expectations about disease, and treatment in patients with diabetes and macular edema treated with intravitreal injections (IVTI) and to characterize patient profiles. Methods Cross-sectional survey including a preliminary qualitative phase (20 patients with DME, treated or treatment-naive, 5 female and 15 male, age 36–74 years) followed by a quantitative survey (116 patients treated with IVTI for DME). Data ASKIA Analyze (version 5.3.3.5) was used for descriptive statistics, and R software (version 3.4.1) for multiple correspondence analysis. Results The qualitative phase identified the wording used by patients and information helpful to propose modalities of response in the quantitative phase. In the quantitative survey (116 patients, mean age 66.6 years), most patients were treated with anti-vascular endothelial growth factor. Overall, 71.9% reported that the disease negatively affected their daily activities and 33.1% considered that regular visits to the ophthalmologist were disrupting their life. Treatment expectations differed significantly between patients in terms of disease experience (visit and injection schedules), fears and feelings, and relationship with physicians, allowing three patient profiles to be identified: “Worried” patients (n = 45) felt isolated and were worried about the need for repeated treatment and possible side effects. They were mainly active men aged < 60 with type I diabetes (T1D) and DME diagnosed for > 2 years; “Curious” patients (n = 21) experienced insufficient support and requested more information on their disease and existing treatments. They were mainly single women aged 60–69 years; “Passive” patients (n = 50) felt sufficiently informed by their ophthalmologist and were not concerned by DME. They were older (mean age: 70 years) and mainly type 2 diabetic men. Conclusions Patients with diabetes and macular edema treated with IVTI form a heterogeneous group regarding fears and expectations. Different patient profiles were identified and need to be confirmed in larger studies. A better understanding of psychological profiles may optimize compliance of diabetic patients.
dc.language.isoENen_US
dc.subjectLEHA
dc.title.enExpectations and fears of patients with diabetes and macular edema treated by intravitreal injections
dc.title.alternativeActa Diabetolen_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1007/s00592-020-01513-9en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
dc.identifier.pubmed32274583en_US
bordeaux.journalActa Diabetologicaen_US
bordeaux.page1081-1091en_US
bordeaux.volume57en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - U1219en_US
bordeaux.issue9en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.teamLEHA_BPH
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.identifierhal-03120018
hal.version1
hal.date.transferred2021-01-25T10:30:29Z
hal.exporttrue
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