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Persistent Soiling Affects Quality of Life in Children With Hirschsprung's Disease

dc.rights.licenseopenen_US
dc.contributor.authorESPESO, Lucile
dc.contributor.authorCOUTABLE, Audrey
dc.contributor.authorFLAUM, Valerie
dc.contributor.authorREBEUH, Julie
dc.contributor.authorLAVRAND, Frederic
dc.contributor.authorPODEVIN, Guillaume
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorLAMIREAU, Thierry
dc.contributor.authorENAUD, Raphael
dc.contributor.authorTALON, Isabelle
dc.date.accessioned2021-01-25T10:12:45Z
dc.date.available2021-01-25T10:12:45Z
dc.date.issued2020
dc.identifier.issn1536-4801 (Electronic) 0277-2116 (Linking)en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/25974
dc.description.abstractEnObjective: This multicentric study aimed to evaluate the quality of life (QOL) in children with Hirschsprung's disease (HD). Methods: HD patients aged from 6 to 18 years and followed-up in 2 French pediatric surgery centers were included in this study. QOL was assessed using the HAQL questionnaires according to age (6–11 and 12–18), filled by patients and their parents (proxy reports) and correlated with initial disease characteristics, nutritional status, and functional score of Krickenbeck. Results: Sixty-three patients were included. The acquisition of satisfactory voluntary bowel movements was found in only 50% of the 6 to 11 years old and 68% of the teenagers. Seventy percentage of the children and 55% of teenagers had soiling issues. The overall HAQLproxy6--11 score was 528/700; best scores were found for “fecal continence” (94/100), “social functioning” (94/100), and “urinary continence” (92/100) whereas the worst scores were for “general well-being” (64/100) and “diurnal fecal continence” (58/100). The overall HAQLproxy12--16 score was 607/700; best scores were for “urinary continence” (96/100) and “social functioning” (93/100). In a multivariate analysis, soiling was the only factor significantly associated with low QOL (P = 0.03). Conclusions: Soiling remains frequent in children operated on for HD and negatively affects their QOL. Assessment and treatment of soiling should be the priority for medical teams in the follow-up of these children.
dc.language.isoENen_US
dc.subjectLEHA
dc.title.enPersistent Soiling Affects Quality of Life in Children With Hirschsprung's Disease
dc.title.alternativeJ Pediatr Gastroenterol Nutren_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1097/MPG.0000000000002564en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
dc.identifier.pubmed31978024en_US
bordeaux.journalJournal of Pediatric Gastroenterology and Nutritionen_US
bordeaux.page238-242en_US
bordeaux.volume70en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - UMR 1219en_US
bordeaux.issue2en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.teamLEHA_BPH
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.identifierhal-03119918
hal.version1
hal.date.transferred2021-01-25T10:12:49Z
hal.exporttrue
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