Afficher la notice abrégée

Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative

dc.rights.licenseopenen_US
dc.contributor.authorRUYSSEN-WITRAND, Adeline
dc.contributor.authorCAILLET-PORTILLO, Damien
dc.contributor.authorNAJM, Aurélie
dc.contributor.authorFOGEL, Olivier
dc.contributor.authorBAILLET, Athan
dc.contributor.authorCLAUDEPIERRE, Pascal
dc.contributor.authorCONORT, Orenella
dc.contributor.authorDERNIS, Emmanuelle
dc.contributor.authorFAYET, Françoise
dc.contributor.authorGOSSEC, Laure
dc.contributor.authorGOUPILLE, Philippe
dc.contributor.authorHUDRY, Christophe
dc.contributor.authorLETAROUILLY, Jean-Guillaume
dc.contributor.authorLUKAS, Cédric
dc.contributor.authorMAROTTE, Hubert
dc.contributor.authorMOLTO, Anna
dc.contributor.authorPOUPLIN, Sophie
dc.contributor.authorSENBEL, Eric
dc.contributor.authorSORDET, Christelle
dc.contributor.authorTOURNADRE, Anne
hal.structure.identifierImmunology from Concept and Experiments to Translation = Immunologie Conceptuelle, Expérimentale et Translationnelle [ImmunoConcept]
dc.contributor.authorTRUCHETET, Marie-Elise
dc.contributor.authorWENDLING, Daniel
dc.contributor.authorDOUGADOS, Maxime
dc.date.accessioned2025-01-27T13:02:15Z
dc.date.available2025-01-27T13:02:15Z
dc.date.issued2024-09
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/204593
dc.description.abstractEnNational and international scientific societies advocate for a regular, systematic, and standardized global evaluation of axial spondyloarthritis (axSpA) patients. However, there are no recommendations specifying the content of this global evaluation. This initiative aimed to propose a standardized reporting framework, using evidence-based and consensus approaches, to collect data on all domains of axSpA. Methods: A literature review and consensus process involved a steering committee and an expert panel of 37 rheumatologists and health professionals. The first steering committee took place in March 2022 and identified the main domains for inclusion in the standardized report. A hierarchical literature review was conducted to identify items within these domains and tools for assessment. The items and tools for assessment were discussed and consensus was reached through a vote session during an expert meeting that took place in March 2023. Results: The steering committee identified four main domains to include in the standardized reporting framework: disease assessment, comorbidities, lifestyle, and quality of life. Items and tools for assessment were adopted after the expert meeting. Additionally, recommendations regarding digital tools (websites, apps, social media) were provided. Conclusion: This initiative led to a consensus, based on evidence and expertise, on a reporting framework for use during periodic systematic global evaluations of axSpa in daily practice.
dc.language.isoENen_US
dc.subject.enSpondyloarthritis
dc.subject.enDisease assessment
dc.subject.enComorbidities
dc.subject.enQuality of life
dc.subject.enE-health
dc.title.enStandardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative
dc.typeArticle de revueen_US
dc.identifier.doi10.1016/j.jbspin.2024.105733en_US
dc.subject.halSciences du Vivant [q-bio]/Immunologieen_US
dc.identifier.pubmed38604594en_US
bordeaux.journalJoint Bone Spineen_US
bordeaux.volume91en_US
bordeaux.hal.laboratoriesImmunoConcEpT - UMR 5164en_US
bordeaux.issue5en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionCNRSen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.popularnonen_US
hal.audienceInternationaleen_US
hal.exportfalse
dc.rights.ccPas de Licence CCen_US
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Joint%20Bone%20Spine&rft.date=2024-09&rft.volume=91&rft.issue=5&rft.au=RUYSSEN-WITRAND,%20Adeline&CAILLET-PORTILLO,%20Damien&NAJM,%20Aur%C3%A9lie&FOGEL,%20Olivier&BAILLET,%20Athan&rft.genre=article


Fichier(s) constituant ce document

Thumbnail
Nom:
ImmunoConcept_Joint_Bone_Spine ...
Taille:
669.7Ko
Format:
PDF
Voir/Ouvrir

Ce document figure dans la(les) collection(s) suivante(s)

Afficher la notice abrégée