Mostrar el registro sencillo del ítem

Improving Clinical Management of Diabetic Macular Edema: Insights from a Global Survey of Patients, Healthcare Providers, and Clinic Staff

dc.rights.licenseopenen_US
dc.contributor.authorZIEMSSEN, Focke
dc.contributor.authorSYLVANOWICZ, Michelle
dc.contributor.authorAMOAKU, Winfried M
dc.contributor.authorASLAM, Tariq
dc.contributor.authorELDEM, Bora
dc.contributor.authorFINGER, Robert P
dc.contributor.authorGALE, Richard P
dc.contributor.authorKODJIKIAN, Laurent
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorKOROBELNIK, Jean-Francois
dc.contributor.authorLIN, Xiaofeng
dc.contributor.authorLOEWENSTEIN, Anat
dc.contributor.authorMITCHELL, Paul
dc.contributor.authorMURPHY, Moira
dc.contributor.authorOWENS, David R
dc.contributor.authorPARKER, Nick
dc.contributor.authorPEARCE, Ian
dc.contributor.authorRODRÍGUEZ, Francisco J
dc.contributor.authorSTERN, Jude
dc.contributor.authorTALKS, S James
dc.contributor.authorWONG, David T
dc.contributor.authorWONG, Tien Yin
dc.contributor.authorBARRATT, Jane
dc.date.accessioned2025-01-27T12:41:13Z
dc.date.available2025-01-27T12:41:13Z
dc.date.issued2025-01-01
dc.identifier.issn2193-8245en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/204592
dc.description.abstractEnIn contrast with patients receiving therapy for retinal disease during clinical trials, those treated in routine clinical practice experience various challenges (including administrative, clinic, social, and patient-related factors) that can often result in high patient and clinic burden, and contribute to suboptimal visual outcomes. The objective of this study was to understand the challenges associated with clinical management of diabetic macular edema from the perspectives of patients, healthcare providers, and clinic staff, and identify opportunities to improve eye care for people with diabetes. We conducted a survey of patients with diabetic macular edema, providers, and clinic staff in 78 clinics across 24 countries on six continents, representing a diverse range of individuals, healthcare systems, settings, and reimbursement models. Surveys comprised a series of single- and multiple-response questions completed anonymously. Data gathered included patient personal characteristics, challenges with appointment attendance, treatment experiences, and opportunities to improve support. Provider and clinic staff surveys asked similar questions about their perspectives; and clinic characteristics were also captured. Overall, 5681 surveys were gathered: 3752 from patients with diabetic macular edema, 680 from providers, and 1249 from clinic staff. Too many appointments, too short treatment intervals, difficulties in traveling to the clinic or arranging adequate support to travel, out-of-pocket costs, office/parking fees, and long waiting times were noted by all as contributing to increase the burden on the patient and caregiver. Patients generally desired more in-depth discussions with their provider, which would help with information exchange and better expectation-setting. The wealth of systematic data generated by this global survey highlights the breadth and scale of challenges associated with the clinical management of patients with diabetic macular edema. Addressing the opportunities for improvement raised by patients, providers, and clinic staff could increase patient adherence to treatment, reduce appointment burden, and improve clinic capacity.
dc.language.isoENen_US
dc.rightsAttribution-NonCommercial 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/3.0/us/*
dc.subject.enDiabetes
dc.subject.enMacular edema
dc.subject.enPatient experience
dc.subject.enVisual outcomes
dc.title.enImproving Clinical Management of Diabetic Macular Edema: Insights from a Global Survey of Patients, Healthcare Providers, and Clinic Staff
dc.title.alternativeOphthalmol Theren_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1007/s40123-024-01060-4en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
dc.identifier.pubmed39673039en_US
bordeaux.journalOphthalmology and Therapyen_US
bordeaux.page229-246en_US
bordeaux.volume14en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - UMR 1219en_US
bordeaux.issue1en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionINSERMen_US
bordeaux.teamLEHA_BPHen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
bordeaux.identifier.funderIDBayer Consumer Healthen_US
bordeaux.import.sourcepubmed
hal.identifierhal-04913947
hal.version1
hal.date.transferred2025-01-27T12:41:16Z
hal.popularnonen_US
hal.audienceInternationaleen_US
hal.exporttrue
workflow.import.sourcepubmed
dc.rights.ccPas de Licence CCen_US
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Ophthalmology%20and%20Therapy&rft.date=2025-01-01&rft.volume=14&rft.issue=1&rft.spage=229-246&rft.epage=229-246&rft.eissn=2193-8245&rft.issn=2193-8245&rft.au=ZIEMSSEN,%20Focke&SYLVANOWICZ,%20Michelle&AMOAKU,%20Winfried%20M&ASLAM,%20Tariq&ELDEM,%20Bora&rft.genre=article


Archivos en el ítem

Thumbnail
Nombre:
BPH_OphthalmolTher_2024_Ziemss ...
Tamaño:
832.6Kb
Formato:
PDF
Ver/Abrir
Thumbnail
Nombre:
license_rdf
Tamaño:
920bytes
Formato:
application/rdf+xml
Ver/Abrir

Este ítem aparece en la(s) siguiente(s) colección(ones)

Mostrar el registro sencillo del ítem