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Global Insights from Patients, Providers, and Staff on Challenges and Solutions in Managing Neovascular Age-Related Macular Degeneration

dc.rights.licenseopenen_US
dc.contributor.authorLOEWENSTEIN, Anat
dc.contributor.authorSYLVANOWICZ, Michelle
dc.contributor.authorAMOAKU, Winfried M
dc.contributor.authorASLAM, Tariq
dc.contributor.authorCHEUNG, Chui Ming Gemmy
dc.contributor.authorELDEM, Bora
dc.contributor.authorFINGER, Robert P
dc.contributor.authorGALE, Richard P
dc.contributor.authorKODJIKIAN, Laurent
dc.contributor.authorKOH, Adrian
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorKOROBELNIK, Jean-Francois
dc.contributor.authorLIN, Xiaofeng
dc.contributor.authorMITCHELL, Paul
dc.contributor.authorMURPHY, Moira
dc.contributor.authorOKADA, Mali
dc.contributor.authorPEARCE, Ian
dc.contributor.authorRODRIGUEZ, Francisco J
dc.contributor.authorSTERN, Jude
dc.contributor.authorTALKS, S James
dc.contributor.authorWONG, David T
dc.contributor.authorWONG, Tien Yin
dc.contributor.authorZIEMSSEN, Focke
dc.contributor.authorBARRATT, Jane
dc.date.accessioned2025-01-27T08:32:23Z
dc.date.available2025-01-27T08:32:23Z
dc.date.issued2025-01-01
dc.identifier.issn2193-8245en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/204588
dc.description.abstractEnNeovascular age-related macular degeneration is a global public-health concern, associated with a considerable burden to individuals, healthcare systems, and society. The objective of this study was to understand different perspectives on the challenges associated with the clinical management of neovascular age-related macular degeneration, which could elucidate measures to comprehensively improve clinical care and outcomes. A survey was carried out of patients with neovascular age-related macular degeneration, their providers, and clinic staff in 77 clinics across 24 countries on six continents, from a diverse range of healthcare systems, settings, and reimbursement models. Surveys comprised a series of single/multiple-response questions completed anonymously. Data gathered included patient personal characteristics, appointment attendance challenges, treatment experiences, and opportunities to improve support. Provider and clinic staff surveys asked similar questions about their perspectives; clinic characteristics were also captured. There were 6425 responses; 4558 patients with neovascular age-related macular degeneration, 659 providers, and 1208 clinic staff. Challenges identified included concern about patient burden to family/friends, high frequency of treatment, difficulties in traveling to appointments, long waiting times, and insufficient comprehension of neovascular age-related macular degeneration. Participants identified logistical (improved financial assistance with treatment and out-of-pocket costs, and appointment reminders), operational (addressing clinic set up to reduce waiting times and improving the amount of time providers spend with patients), and educational (improving quality and provision of patient information and expectation-setting) opportunities to improve care. The wealth of data generated by this global survey highlights the breadth of challenges associated with clinical management of patients with neovascular age-related macular degeneration. Addressing the opportunities raised could improve patient adherence to treatment and potentially outcomes, reduce appointment burden, and increase clinic capacity.
dc.language.isoENen_US
dc.rightsAttribution-NonCommercial 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by-nc/3.0/us/*
dc.subject.enNeovascular age-related macular degeneration
dc.subject.enPatient experience
dc.subject.ennAMD
dc.title.enGlobal Insights from Patients, Providers, and Staff on Challenges and Solutions in Managing Neovascular Age-Related Macular Degeneration
dc.title.alternativeOphthalmol Theren_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1007/s40123-024-01061-3en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
dc.identifier.pubmed39673040en_US
bordeaux.journalOphthalmology and Therapyen_US
bordeaux.page211-228en_US
bordeaux.volume14en_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - UMR 1219en_US
bordeaux.issue1en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionINSERMen_US
bordeaux.teamLEHA_BPHen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
bordeaux.identifier.funderIDBayer Consumer Healthen_US
bordeaux.import.sourcepubmed
hal.identifierhal-04913232
hal.version1
hal.date.transferred2025-01-27T08:32:27Z
hal.popularnonen_US
hal.audienceInternationaleen_US
hal.exporttrue
workflow.import.sourcepubmed
dc.rights.ccPas de Licence CCen_US
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Ophthalmology%20and%20Therapy&rft.date=2025-01-01&rft.volume=14&rft.issue=1&rft.spage=211-228&rft.epage=211-228&rft.eissn=2193-8245&rft.issn=2193-8245&rft.au=LOEWENSTEIN,%20Anat&SYLVANOWICZ,%20Michelle&AMOAKU,%20Winfried%20M&ASLAM,%20Tariq&CHEUNG,%20Chui%20Ming%20Gemmy&rft.genre=article


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