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Utilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke

dc.rights.licenseopenen_US
dc.contributor.authorWILLIAMS, Louise R.
dc.contributor.authorALI, Myzoon
dc.contributor.authorVANDENBERG, Kathryn
dc.contributor.authorWILLIAMS, Linda J.
dc.contributor.authorABO, Masahiro
dc.contributor.authorBECKER, Frank
dc.contributor.authorBOWEN, Audrey
dc.contributor.authorBRANDENBURG, Caitlin
dc.contributor.authorBREITENSTEIN, Caterina
dc.contributor.authorBRUEHL, Stefanie
dc.contributor.authorCOPLAND, David A.
dc.contributor.authorCRANFILL, Tamara B.
dc.contributor.authorDI PIETRO-BACHMANN, Marie
dc.contributor.authorENDERBY, Pamela
dc.contributor.authorFILLINGHAM, Joanne
dc.contributor.authorGALLI, Federica Lucia
dc.contributor.authorGANDOLFI, Marialuisa
hal.structure.identifierBordeaux population health [BPH]
dc.contributor.authorGLIZE, Bertrand
dc.contributor.authorGODECKE, Erin
dc.contributor.authorHAWKINS, Neil
dc.contributor.authorHILARI, Katerina
dc.contributor.authorHINCKLEY, Jacqueline
dc.contributor.authorHORTON, Simon
dc.contributor.authorHOWARD, David
dc.contributor.authorJAECKS, Petra
dc.contributor.authorJEFFERIES, Elizabeth
dc.contributor.authorJESUS, Luis M. T.
dc.contributor.authorKAMBANAROS, Maria
dc.contributor.authorKANG, Eun Kyoung
dc.contributor.authorKHEDR, Eman M.
dc.contributor.authorKONG, Anthony Pak-Hin
dc.contributor.authorKUKKONEN, Tarja
dc.contributor.authorLAGANARO, Marina
dc.contributor.authorRALPH, Matthew A. Lambon
dc.contributor.authorLASKA, Ann Charlotte
dc.contributor.authorLEEMANN, Beatrice
dc.contributor.authorLEFF, Alexander P.
dc.contributor.authorLIMA, Roxele Ribeiro
dc.contributor.authorLORENZ, Antje
dc.contributor.authorMACWHINNEY, Brian
dc.contributor.authorMARSHALL, Rebecca Shisler
dc.contributor.authorMATTIOLI, Flavia
dc.contributor.authorMAVIS, Iiknur
dc.contributor.authorMEINZER, Marcus
dc.contributor.authorNILIPOUR, Reza
dc.contributor.authorNOE, Enrique
dc.contributor.authorPAIK, Nam Jong
dc.contributor.authorPALMER, Rebecca
dc.contributor.authorPAPATHANASIOU, Ilias
dc.contributor.authorPATRICIO, Brigida F.
dc.contributor.authorMARTINS, Isabel Pavao
dc.contributor.authorPRICE, Cathy
dc.contributor.authorJAKOVAC, Tatjana Prizl
dc.contributor.authorROCHON, Elizabeth
dc.contributor.authorROSE, Miranda L.
dc.contributor.authorROSSO, Charlotte
dc.contributor.authorRUBI-FESSEN, Ilona
dc.contributor.authorRUITER, Marina B.
dc.contributor.authorSNELL, Claerwen
dc.contributor.authorSTAHL, Benjamin
dc.contributor.authorSZAFLARSKI, Jerzy P.
dc.contributor.authorTHOMAS, Shirley A.
dc.contributor.authorVAN DE SANDT-KOENDERMAN, Mieke
dc.contributor.authorVAN DER MEULEN, Ineke
dc.contributor.authorVISCH-BRINK, Evy
dc.contributor.authorWORRALL, Linda
dc.contributor.authorWRIGHT, Heather Harris
dc.contributor.authorBRADY, Marian C.
dc.contributor.authorCOLLABORATORS, RELEASE
dc.date.accessioned2022-01-17T13:04:19Z
dc.date.available2022-01-17T13:04:19Z
dc.date.issued2021-10-09
dc.identifier.issn0268-7038en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/124412
dc.description.abstractEnBackground: Collation of aphasia research data across settings, countries and study designs using big data principles will support analyses across different language modalities, levels of impairment, and therapy interventions in this heterogeneous population. Big data approaches in aphasia research may support vital analyses, which are unachievable within individual trial datasets. However, we lack insight into the requirements for a systematically created database, the feasibility and challenges and potential utility of the type of data collated. Aim: To report the development, preparation and establishment of an internationally agreed aphasia after stroke research database of individual participant data (IPD) to facilitate planned aphasia research analyses. Methods: Data were collated by systematically identifying existing, eligible studies in any language (>= 10 IPD, data on time since stroke, and language performance) and included sourcing from relevant aphasia research networks. We invited electronic contributions and also extracted IPD from the public domain. Data were assessed for completeness, validity of value-ranges within variables, and described according to pre-defined categories of demographic data, therapy descriptions, and language domain measurements. We cleaned, clarified, imputed and standardised relevant data in collaboration with the original study investigators. We presented participant, language, stroke, and therapy data characteristics of the final database using summary statistics. Results: From 5256 screened records, 698 datasets were potentially eligible for inclusion; 174 datasets (5928 IPD) from 28 countries were included, 47/174 RCT datasets (1778 IPD) and 91/174 (2834 IPD) included a speech and language therapy (SLT) intervention. Participants' median age was 63 years (interquartile range [53, 72]), 3407 (61.4%) were male and median recruitment time was 321 days (IQR 30, 1156) after stroke. IPD were available for aphasia severity or ability overall (n = 2699; 80 datasets), naming (n = 2886; 75 datasets), auditory comprehension (n = 2750; 71 datasets), functional communication (n = 1591; 29 datasets), reading (n = 770; 12 datasets) and writing (n = 724; 13 datasets). Information on SLT interventions were described by theoretical approach, therapy target, mode of delivery, setting and provider. Therapy regimen was described according to intensity (1882 IPD; 60 datasets), frequency (2057 IPD; 66 datasets), duration (1960 IPD; 64 datasets) and dosage (1978 IPD; 62 datasets). Discussion: Our international IPD archive demonstrates the application of big data principles in the context of aphasia research; our rigorous methodology for data acquisition and cleaning can serve as a template for the establishment of similar databases in other research areas.
dc.language.isoENen_US
dc.rightsAttribution 3.0 United States*
dc.rights.urihttp://creativecommons.org/licenses/by/3.0/us/*
dc.subject.enStroke
dc.subject.enAphasia
dc.subject.enIndividual participant data
dc.subject.enSpeech and language therapy
dc.subject.enRehabilitation reporting standards
dc.title.enUtilising a systematic review-based approach to create a database of individual participant data for meta- and network meta-analyses: the RELEASE database of aphasia after stroke
dc.typeArticle de revueen_US
dc.identifier.doi10.1080/02687038.2021.1897081en_US
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologieen_US
bordeaux.journalAphasiologyen_US
bordeaux.hal.laboratoriesBordeaux Population Health Research Center (BPH) - UMR 1219en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionINSERMen_US
bordeaux.teamHACSen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
hal.identifierhal-03528818
hal.version1
hal.date.transferred2022-01-17T13:04:27Z
hal.exporttrue
dc.rights.ccPas de Licence CCen_US
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Aphasiology&rft.date=2021-10-09&rft.eissn=0268-7038&rft.issn=0268-7038&rft.au=WILLIAMS,%20Louise%20R.&ALI,%20Myzoon&VANDENBERG,%20Kathryn&WILLIAMS,%20Linda%20J.&ABO,%20Masahiro&rft.genre=article


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