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Supporting Family Members in Palliative Phases of Cancer: A Qualitative Study Comparing Health Care Professionals and Non-Health Care Professionals

dc.rights.licenseopenen_US
dc.contributor.authorSTADELMAIER, Nena
dc.contributor.authorASSEMAT, Laura
dc.contributor.authorPATERNOSTRE, Bernard
dc.contributor.authorBARTHOLOME, Cécile
dc.contributor.authorDUGUEY-CACHET, Odile
hal.structure.identifierBordeaux population health [BPH]
hal.structure.identifierLaboratoire de psychologie [LabPsy]
dc.contributor.authorQUINTARD, Bruno
ORCID: 0000-0002-2206-6137
IDREF: 057867968
dc.date.accessioned2024-02-08T07:56:25Z
dc.date.available2024-02-08T07:56:25Z
dc.date.issued2022-04-01
dc.identifier.issn1539-0705en_US
dc.identifier.urihttps://oskar-bordeaux.fr/handle/20.500.12278/188001
dc.description.abstractEnThis comparative and exploratory multicenter study explored the experiences of 2 groups of family members caring for relatives in palliative phases of cancer: caregivers practicing health care professionals (doctors/nurses) and caregivers who were not health care professionals. The ill family members of the 2 groups were also interviewed. Twenty-seven volunteer caregiving relatives (including 16 health professionals) and 18 cancer patients participated in psychologist-conducted semistructured interviews exploring psychological experiences of the support (including daily, personal, and medical care) and, for caregivers, of the interactions with medical teams. Interviews were recorded and transcribed for inductive thematic analysis. Caregiving relatives, irrespective of their profession, all reported developing closer bonds with their relative since the cancer diagnosis and being highly involved in the palliative care. They also all reported psychological stress with additional stress linked to health care professionals' acute knowledge of the disease and treatments often experienced as a burden. Whereas non-health care professional caregivers reported hope for favorable disease progression, health professional caregivers did not. Interactions with the health care team were generally described as satisfactory. A minority of health care professional caregivers reported difficulties when the health care team perceived their investment in the patient's care as negative. Patients' perceptions were consistent with caregiver perceptions.
dc.language.isoENen_US
dc.subject.enCaregivers
dc.subject.enFamily
dc.subject.enHealth Personnel
dc.subject.enHumans
dc.subject.enNeoplasms
dc.subject.enPalliative Care
dc.title.enSupporting Family Members in Palliative Phases of Cancer: A Qualitative Study Comparing Health Care Professionals and Non-Health Care Professionals
dc.title.alternativeJ Hosp Palliat Nursen_US
dc.typeArticle de revueen_US
dc.identifier.doi10.1097/NJH.0000000000000827en_US
dc.subject.halSciences cognitives/Psychologie
dc.subject.halSciences du Vivant [q-bio]/Santé publique et épidémiologie
dc.identifier.pubmed35212663en_US
bordeaux.journalJournal of Hospice and Palliative Nursingen_US
bordeaux.pageE18-E25en_US
bordeaux.volume24en_US
bordeaux.hal.laboratoriesLaboratoire de psychologie (LabPsy) - UR 4139en_US
bordeaux.issue2en_US
bordeaux.institutionUniversité de Bordeauxen_US
bordeaux.institutionINSERM
bordeaux.teamEPICENE_BPHen_US
bordeaux.peerReviewedouien_US
bordeaux.inpressnonen_US
bordeaux.import.sourcepubmed
hal.identifierhal-04445666
hal.version1
hal.date.transferred2024-02-09T12:16:15Z
hal.popularnonen_US
hal.audienceInternationaleen_US
hal.exporttrue
workflow.import.sourcepubmed
dc.rights.ccPas de Licence CCen_US
bordeaux.COinSctx_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&rft.jtitle=Journal%20of%20Hospice%20and%20Palliative%20Nursing&rft.date=2022-04-01&rft.volume=24&rft.issue=2&rft.spage=E18-E25&rft.epage=E18-E25&rft.eissn=1539-0705&rft.issn=1539-0705&rft.au=STADELMAIER,%20Nena&ASSEMAT,%20Laura&PATERNOSTRE,%20Bernard&BARTHOLOME,%20C%C3%A9cile&DUGUEY-CACHET,%20Odile&rft.genre=article


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